Building systems that give patients granular control over who can access their health data, auditing every request and providing revocable, time-limited permissions for truly patient-centered care.
Healthcare data should belong to patients, not institutions. Our research develops innovative technologies that put patients in control of their health information while enabling appropriate clinical access.
We've created protocols and systems that balance patient privacy with clinical needs, ensuring that data sharing is transparent, auditable, and always under patient control.
Innovative systems enabling patient-controlled healthcare data sharing
Patient-Initiated Data Granting
A revolutionary protocol that enables patients to safely and selectively share their health records with healthcare providers, researchers, or other authorized parties through a secure, auditable system.
Reducing the number of decisions that require clinic visits or clinician oversigh.
Decision-making effectively brings full clinical context to self-measrement.
Review decisions made by clinicians for maximizing patient preference.
AI Agent dedicated to the patient
Guardian Angel was a collaborative project, currently between the MIT Lab for Computer Science's Clinical Decision Making Group (MEDG) and The Children's Hospital Informatics Program (CHIP), begun in 1994 to put power and responsibility for health care more into the hands of patients
Network of Enigmatic Exceptional Responders
A patient-powered research initiative that captures and analyzes data from cancer patients who have unique responses to treatments, transforming outlier cases into valuable insights for precision medicine.
Patients who responded long-term to cancer treatments when only a tiny percentage typically do.
Individuals who responded well to drugs not generally effective for their cancer type
Patients with remarkable responses to established therapies in unexpected ways
Advanced cryptographic and architectural approaches to data control
Early (1990s) Advanced encryption to ensure data remains private while enabling selective disclosure.
Cryptographic logging ensures that all data access requests and permissions are permanently recorded and tamper-proof.
Sophisticated identity verification and access control systems ensure only authorized parties can request and access patient data.
Seamless integration with existing healthcare systems through standardized APIs and interoperability protocols.
Continuous monitoring and alerting systems track data access patterns and notify patients of all data sharing activities.
Every system component is designed with privacy as a fundamental principle, not an afterthought.
Generation of patient-controlled systems architected for policy.""
Patients gain unprecedented control over their health data, deciding exactly who can access what information and for how long.
Complete transparency and audit trails build trust between patients and healthcare providers, encouraging better data sharing.
Appropriate access to patient data when needed most, improving clinical outcomes while maintaining privacy protections.
Exceptional responders provide insights that drive precision medicine advances, turning rare cases into breakthrough discoveries for broader patient populations.
Help us build a future where patients control their health data while enabling the best possible care. Explore our open-source projects and research.